Tag Archives: CAPS for families of special needs children

Should You Install a Child-Sized Potty for Your Special Needs Child?

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Affordable accessibility and no institutional appearance!

I know that some of you don’t even realize that such a thing exists:  a toilet sized for preschoolers and kindergarteners!  Well, you won’t find it in Lowe’s or Home Depot on the showroom floor, but you can buy them online, and it is an option to consider.  Here are the reasons you might put one in your child’s main bathroom:

  1. You have the space already.  Some homes are large enough to allow each bedroom to have its own bathroom.   If you have the option, it might be worth it during renovations.  It shouldn’t add considerably to the overall cost, and it should not be that difficult to swap out when your child grows.  If you have a bathroom near the playroom, that might be another good location for this potty.  Most older kids and adults can make it to another half-bath on that floor, but it might be perfect for your younger child and his friends!
  2. Your child is terrified of the standard-height potty.  Some kids are unstable, some are afraid of heights, and some have such poor proprioception and/or visual skills that they really, really need their feet on the ground, not on a footstool.
  3. Your child was a preemie, and their growth pattern indicates that they will fit on this toilet comfortably for a while.  Some preemies catch up, and some stay on the petite size.  Those children will be able to use a preschool-right potty into early elementary school.  Even if your preemie is average in size, they may have issues such as vision or sensory sensitivity that will make this potty a great idea for a shorter time.

I am just beginning to build my materials to do in-home consultations as a CAPS, but I think that an underserved population are parents of special needs kids that would benefit from universal design and adaptive design.  This toilet would come under the category of adaptive design, and it is an easily affordable solution for some children.  Having more comfort on the toilet speeds up training for many kids.  It also decreases the aggravation of training and monitoring safety for parents.  I am very committed to helping the entire family have an easier time of things like toilet training.

Think about what your family’s needs and capabilities are, and if you are planning to remodel or build a new home, consider finding a CAPS professional in your area to help you make your home as welcoming for your special needs child as possible!  For more information, read How An Aging-In-Place Specialist Can Help You Design an Accessible Home for Your Child.

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How An Aging-In-Place Specialist Can Help You Design an Accessible Home for Your Child

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I finally did it; I got my CAPS certification!  I know, you are asking yourself “What does a pediatric occupational therapist want with an Aging-In-Place certificate?”  Well, as it turns out, many of the barriers and home access problems that require redesign or better design for older adults are also issues with children dealing with developmental issues.  And they deserve the most functional home they can possibly have!

I treat children in their homes, so I see a wide variety of situations.  Here are a few of the most common problems I encounter:

  1. Entries and stairs that don’t have railings at a helpful height for children with motor control issues.  If your child is likely to struggle with stairs for a while, adding a lower railing on both sides of the stairs is very, very helpful.  They can be removed later on, but since you cannot alter the risers (the height of the steps) without major construction, do what you can to give your child a secure handhold.
  2. Slippery floors.  Tile can be treated to make it just a bit tackier, but not feel like gravel.  Online sellers will offer this, and you can apply it yourself if you are skilled, or hire a tile company to coat your tile for you.
  3. Right-height work areas.  Young children with motor issues often need the play table to be the correct height for them.  Their reach and grasp, as well as their balance, improves when they are sitting well.  But they grow.  What can you do?  I suggest buying an inexpensive wooden table and cutting the legs until they are the right height.  When your child outgrows it, buy a new table and trim the legs as needed.   You can add brackets on the leg joints to add stability to an inexpensive table.

If you are in the market for a new home, a CAPS professional can help you think about accessibility as a factor when shopping for real estate.  Although the easiest way to achieve universal access is to build a new home, there are homes that are easier to adapt, and home that are nearly impossible.  Being able to see what a house offers is more than location, location, location.

Know what the implications of your child’s diagnosis means for accessibility and function.  Children with cystic fibrosis, cerebral palsy, or muscular dystrophy will likely do better in a ranch house or a house with an elevator.  Don’t think you have the room for an elevator?  You might, you might not, or you might install a lift instead.  Your CAPS consultant can help you look at all the options.  Improving bathing, grooming and safe play spaces is on the list of things that a CAPS professional can address.  Read Should You Install a Child-Sized Potty for Your Special Needs Child? to find out how this simple and affordable swap could make life easier for both of you.

I will be exploring all of my options for consulting as a CAPS, but my training as an OTR and my background in adult and pediatric home care means that I will be as excited to help young families as to help older people.  Who knows: I may decide to offer a multi-generational package of services!  Stay tuned for more information and suggestions for accessibility!

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Universal Design For Parents of Special Needs Kids: It’s Important for You Too!

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Stunning, but how many potential safety problems can YOU spot?

I just finished the coursework for my CAPS certification (certified aging-in-place specialist)!  Amazing instructor and loads of valuable information about construction and renovation that only the National Association of Home Builders could impart.   And not just for aging-in-place; the concepts of accessibility make homes more visitable for family and friends, and more livable and adaptable for the future.   Now I have to decide how to add this knowledge to my practice to help families make their lives easier and better….might as well start blogging about it now!

Universal design is more visible in public places.  Hotels are installing features that make showers more accessible and banks are providing variable-height counters to fill out deposit slips.   But most of us don’t think that we need universal or accessible design in our own homes as non-disabled adults.  Wrong.

Universal design allows your great-grandmother more ease when she wants to meet your baby in your own home.  It helps your neighbor with multiple sclerosis come over and water your plants when you take the kids to Disney.  And it allows you to carry a kid, carry a bag and pull the dog into the house without dropping one of them.  Universal design also allows your husband, who tore his achilles tendon during a pickup basketball game, to get into the shower by himself while he decides if he can admit he’s not 25 anymore.

 But for parents of kids with special needs, the need is two-fold: universal design helps them do a demanding physical job, but it also allows their children more independence earlier. These parents are lifting and carrying heavier children than they might otherwise.  In and out of the car, the crib, the stroller and more.  There is a big difference between lifting a 20-pound toddler and a 47-pound preschool child wearing heavy AFOs.  Parents are hauling around equipment like therapeutic strollers, standers and medical equipment every day.  I have written a bit about positioning your child How To Get Your Special Needs Child To Sit Safely In The Tub and Kids With Low Muscle Tone: The Hidden Problems With Strollers  and Should You Install a Child-Sized Potty for Your Special Needs Child?, but now I will be addressing design beyond equipment.

Universal design’s principles of low physical effort and adequate size/space for approach and use will give enough room at a landing for the stroller, and the parent, and the dog.  It will make it possible for your child to open the door for himself and to reach the sink without being held up to the water.   Universal design’s principles of equitable and flexible use will allow children more access with less assistance as they build skills.  The principles of simple and intuitive use, tolerance for error and perceptible information reduces confusion and safety risk to children.  A good example would be faucets with both temperature control valves to prevent scalding and handles marked with red/blue codes instead of H/C.  No reading interpretation is required once your child knows “red is hot” or “red is stop”.  That happens easier and earlier than reading skills.

I don’t hear a lot of parents complain about the wear-and-tear on their bodies as they care for their children, but I see it.  Parents: don’t think that because you don’t say anything that your occupational therapist isn’t aware that your back is giving out.  That is a shame, because OTs could be helpful to parents in this situation.  Not in telling them to hire help, but in teaching them how to move with more ease and how to select and use equipment based on universal design principles to make life better for everyone.  Read How An Aging-In-Place Specialist Can Help You Design an Accessible Home for Your Child for more information on this subject.

Maybe after this post, I will be hearing from all those parents who go to bed tired and wondering how they will be able to keep up with the physical demands of special needs parenting over the years to come.

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