As a pediatric OT, many of my clients have speech and feeding problems that are attributed to low muscle tone. Very often, that is where assessment ends. Perhaps it shouldn’t. Joint hypermobility can also create issues such as dysarthria, disfluency and poor voice control. It isn’t only about muscles and muscle coordination. Being able to identify all the causes of speech delays and difficulties means better treatment and better results.
I have had the privilege to know a handful of master speech pathologists whose manual evaluation skills are amazing. These clinicians are capable of identifying joint laxity and poor tissue integrity (which contribute to injury, weakness and instability) as well as identifying low muscle tone, sensory processing issues and dyspraxia. They can assess whole-body stability and control instead of ending their assessment at the neck.
It is more difficult to clearly differentiate low muscle tone from hypermobile joints in young children. Assessing the youngest clients that cannot be interviewed and do not follow instructions carefully (or at all!) is a challenge. Many times we are forced to rely on observation and history as much as we use responses from direct interaction with a child. In truth, laxity and low tone often co-exist. Lax joints create overstretched or poorly aligned muscles that don’t contract effectively. Low muscle tone doesn’t support joints effectively to achieve and maintain stability, creating a risk for overstretching ligaments and injuring both tendons and joint capsules. Kids who start out able to speak intelligibly can fatigue by the end of a sentence. A vicious cycle ensues, creating more weakness, instability and more difficulties with motor control.
Some children that are diagnosed with flaccid dysarthria, poor suck/swallow/breathe synchrony, phonological issues and poor respiratory control may be diagnosed later in life (sometimes decades later) as having Ehlers-Danlos Syndrome or generalized benign joint hypermobility syndrome. They often drop the final sounds in a word, or their voice fades away at the end of a sentence. These kids might avoid reading or speaking front of the class when older. This isn’t social anxiety or an attitude problem. They are struggling to achieve and maintain the carefully graded control needed for these speech skills.
You may notice a breathy-ness to their voice that makes them sound more like their grandparents than their peers. Children that avoid running in sports like soccer or hockey aren’t always unable to continue because they are globally fatigued or in pain. Being unable to stabilize their trunk results in inefficient muscular recruitment and limited grading of breath. Ask any runner or singer and they will tell you what that means: game over.
If your child is struggling with these issues and isn’t receiving speech therapy, now may be the time to explore it. A PROMPT-certified therapist may be especially helpful, as this specialized speech therapy treatment approach uses tactile and proprioceptive cues to learn the oral control needed for speech. Your PT or OT can help address the breath control strategies, but learning to use them in speech often requires coordinating this with the training of a speech language pathologist. You and your child may be relieved to learn that there is effective therapy out there!
Looking for more information on hypermobility? I wrote the book for you!
My new e-book, The JointSmart Child: Living and Thriving With Hypermobility Volume One: The Early Years is finally available on Amazon.com as a read-only download and on Your Therapy Source as a printable and click-able download.
It is a practical guide that emphasizes building safety and independence right from the start! Parents learn how to select the right equipment, offer support that teaches safe movement and builds a child’s confidence every step of the way. There are even chapters to improve a parent’s communication effectiveness with babysitters, family members, teachers and doctors. Read Parents of Young Hypermobile Children (and Their Therapists) Finally Get Their Empowerment Manual! to learn more today!
Is your child struggling with toilet training? I wrote another e-book just for YOU!
The Practical Guide to Toilet Training Your Child With Low Tone is available on Amazon and Your Therapy Source. I looked far and wide for resources to help the families I work with as an OT. There wasn’t anything out there that explained why kids and parents find this skill so hard to achieve, so I had to do something to help the situation!